In Association with the Candlelighters Hero Bead Program

A BEAD PROGRAM FOR CHILDREN WITH CANCER

 

 

This bead program is for  Pediatric Hemotology/ Oncology
Patients having treatment at The Children’s
Hospital at Sinai.


This program is a way for children with Cancer
To tell the story of their journey
Through treatment
With beads.

 

 

It provides colorful beads in many shapes and sizes, all of which correspond to specific procedures. This allows  the Children and their Families  a fun and visual way to document and chronicle their journey in the fight against Cancer.

We acknowledge the courage displayed by each and every child during the challenging and difficult journey of treatment.

 

 

HOW DOES THE BEAD PROGRAM WORK?


* Children who receive cancer treatment and wish to participate are given a length of string with beads that spell their first name.

* The special beads of Candlelighters Kids and a Gold Ribbon will also be given to each child at the time of diagnosis.

*Colored beads, each representing a different aspect of care, are available to add to the necklace for procedures performed as both inpatient & outpatient, as well as for some at home treatments.

* Each time a child has a procedure, chemotherapy, surgery, or anything else on the list, it will be theirs, or their parent/gaurdians responsibility to document it on the approriate form provided. Beads will be distributed on a monthly basis.

 

The following is a list of beads available for this program.

 

Air Lift - Helicopter : if child needs to be airlifted anytime during treatment

he/she will receive bead

 

Biopsy Complete - Brown Ball : every time child has a biopsy done he/she

Will receive bead

Blood Transfusion - Red Heart : every time child receives a blood

Transfusion he/she will receive a bead

Bone Marrow Aspirate - Maroon tube w/ white marks : every time child

Has An aspirate done he/she will receive a bead

Bone Marrow Transplant - Rainbow Spike Ball : every time child has to

Receive a BMT he/she will receive a bead

Candlelighters Kid - gold ribbon with candle in middle : at diagnoses

He/she will receive bead

Cast- Looks like a cast - if child needs a cast for any reason during

Treatment he/she will receive bead

Central Line Surgically In - oblong bead with courage written on it : when

Central line is put in, child will receive bead. If line has to

Replaced child will receive an Amber bead

Central Line Surgically Out - Square bead with Smiley Face : Child will

Receive bead when his/her line is surgically removed at

End of treatment

Central Line / Port Access - Tube with stars and stripes : Child will receive

This bead the first time line/port is accessed. Each time after

He/she will receive a red bead. This will only be given for

Hospital and clinic appointments as well as admit of

Medications. Not given for flushes.

Course of Chemo - Green wooden bead : Child will receive bead at the

Start Of every chemo treatment.

CT Scan - Neon Cat : Child will receive bead first time they have to have a

CT Scan done. Every scan done after the first, he/ she will

Receive a Teal Rainbow Luster Bead

Diagnosis - Gold Ribbon : Child will receive at onset of diagnosis

Echocardiogram - Purple Wooden Bead : Child will receive this bead each

Time they have an Echocardiogram done

End of All Treatment (BOY) - Gold medal with a boy on it : Child will

Receive at the end of all treatments

End of All Treatment (GIRL) - Gold medal with a girl on it : Child will

Receive at the end of all treatments

Finger Poke - Multicolored bead : Child will receive bead every time

He/she Has to have a finger poke.

*This bead will not be the same color every time*

General Surgery - Smokey Bead : Child will receive bead if he/she has to

Have any surgeries done during treatment not mentioned

With any other bead

Hair Loss - Wooden bead with a smiley face wearing a bandana: Child will

Receive when he/she loses their hair

ICU/PICU - Green Turtle : Child will receive bead when they stay in the

ICU/PICU the first time. Each stay after he/she will receive a

Green bead

In Hospital Admission - Purple Teddy Bear : Child will receive at onset of

First hospital admit. Each admit after he/she will receive a purple

Bead at start of stay.

Intra Muscular Injection (IM) - Wooden Smiley Faces : Child will receive

Bead first time he/she receives an IM. Each time after that when

He/she receives an IM they will receive a colored wooden bead

* Color of bead may not always be the same*

IV Infusion - Multicolored Acrylic Ring - Child will receive bead first

He/she receives anything through their IV( fluids, meds, lipids

TPN etc.) After the first time child will receive a clear bead. Will

Be given for hospital, clinic & home.

Lumbar Puncture - Light Blue Wavy Bead : Child will receive bead first

Time he/she has a LP done. Each time after he/she will receive

A Light Aqua Snowflake

Magnetic Resonance Imaging (MRI) - Colored Suns : Child will receive

Bead each time they have an MRI done.

* Colors may be different each time*

Nuclear Medicine Scan (MIBG) - Glow in the dark bead : Child will receive

Bead first time he/she has a MIBG done. Each time after child

Will receive an Orange bead

Oral Meds - Assorted Colored Butterflies : Child will receive bead first time

He/she receives oral meds. At the start of oral meds after the

First, child will receive a clear star. (Clinic , Hospital admits

Not for home)

Pet Scan - Bead with Various Animals : Child will receive bead first time

He/she receives a PET Scan. Each time after child will receive a

Frosted clear bead

Platelet Transfusion - Yellow/ Orange bead : Child will receive first time

He/she receives a transfusion. Each time after child will receive

A Gold plated round pearl bead

Radiation - Blue bead with yellow star : child will receive bead first time

He/ she receives radiation. Each time after, child will receive

A yellow bead.

Relapse - Gold medal with HOPE written in it : child will receive if he/she

Relapses with the same or a different form of Cancer

Remission - No Evidence Of Disease (NED) - Wooden smiley face : Child

Will receive when there is No Evidence of Disease or NED

Sedation - Pink/ Blue Moons : Girls will receive a pink moon first time they

Are sedated. Each time after child will receive a pink bead. Boys

Will receive a blue moon first time they are sedated. Each time

After they will receive a blue bead

Shunt Insertion - Clear tube : Child will receive bead if he/she has to

Have a shunt inserted

Stem Cell Harvest - Clear bead with heart and colored dots : child will

Receive bead when he/she goes to harvest.

Total Body Radiation - Star with Glasses : Child will receive if he/she

Has to receive full body radiation.

TPN- Black and White Cow Pattern : Child will receive first time he/she

Receives TPN. Each time after when child STARTS TPN he/she

Will receive a black bead

Travel Long Distance - Red Train : Child will receive bead if he/she has

To travel out of state for either a consult or treatment.

Treatment on Birthday - Gold Balloon Cluster : Child will receive bead if

He/she receives any type of treatment on their birthday

Tube Insertion (Ng tube, G tube) - multicolored square bead : Child will

Receive first time he/she has a tube inserted. Each time after child

Will receive a dark blue bead.

Tumor Removal - Blue Star : Child will receive bead when he/she has

Tumor removed

Wish Trip - Colored Airplane : Child will receive bead if he/she goes

On a wish trip.



* If child doesn’t go on a trip ,but has a wish granted he/she will

Receive a bead that matches Wish as close as possible*

 

X RAY - Bone : child will receive bead if he/she has too have an x-ray

Anytime during treatment. After the first time a milky white bead

Will be given

Years Off Treatment- Number beads : Child will receive bead as they hit

The Year milestones of being off treatment.

 

* PLEASE NOTE THAT SOME BEADS MAY BE SMALL AND CAUSE A CHOKING HAZARD. IF YOUR CHILD IS UNDER THE AGE OF 6 PLEASE HAVE THEM FOR DISPLAY OR HAVE A PARENT AND /OR GUARDIAN WEAR*

 

 

*BEAD SIZE AND DESCRIPTION MAY CHANGE DURING COURSE OF TREATMENT*

*Beads Shown Larger than Actual Size For Reference Purposes*